WWS Experts Weigh in About the ACA Supreme Court Decision

Below is an article from the Woodrow Wilson School of Public and International Affairs at Princeton, which discusses key questions of the Affordable Care Act with Princeton faculty, including Future of Children Senior Editor Janet Currie.

Keith Wailoo, Townsend Martin Professor of History and Public Affairs Woodrow Wilson School of Public and International Affairs

ACA: Lessons from the Road Taken

“The Supreme Court’s ruling on the Affordable Care Act (ACA) is surely a health care milestone, but it is also a remarkable civics lesson about the political and legal complexities involved in making policy on such a grand scale.

“The tortuous path of the health care law illustrates why major initiatives like this happen so infrequently. First, there was the brief window created by Barack Obama’s election and the unexpected Democratic take-over of both houses of Congress with a filibuster-proof majority in the Senate. The possibilities for reform were nearly snatched away many times, most notably after the death of Senator Kennedy. Even after the President and Congressional Democrats took the daring risk of resuscitating the law – knowing that it would cost them politically in the 2010 elections – the political and legal fate of the law seemed unclear. For years to come, the episode will illustrate risk-taking leadership, as well as the ugly horse-trading and imperfections of the legislative process.

“The second tortuous phase of the ACA – the legal debate – offers another lesson… about the thin line separating politics and ideology, on one hand, and constitutional reasoning on the other. Yes, the Supreme Court’s decision revolved around matters of legal interpretation: the Commerce Clause (the limits of the federal government’s power to regulate interstate commerce) and the federal government’s power to tax. But the ruling also highlighted the tensions between the so-called liberal wing of the court and conservative bloc.

“In the interplay of politics and law, the most important civics lesson to emerge from the court phase of the ACA was the tension between two conservative justices – Antonin Scalia and John Roberts.

“Scalia rarely favors expanding federal power, but this time he seemed to be swayed by the political milieu. He echoed the libertarian objections to the ACA mandate, noting that ‘everybody has to buy food sooner or later, so you define the market as food, therefore, everybody is in the market; therefore, you can make people buy broccoli.’ By contrast, Chief Justice Roberts tried hard to mark the line between politics and law. In his opinion, ‘Members of this Court are vested with the authority to interpret the law: we possess neither the expertise nor the prerogative to make policy judgments. Those decisions are entrusted to our Nation’s elected leaders, who can be thrown out of office if the people disagree with them.’ With these words, Roberts walked the high court back from the political precipice. Had he sided with the dissenters, commentators would have questioned the High Court’s partisan politicization – seeing them as nothing more than politicians in black robes – for decades to come. Robert’s ruling saved the court from this fate.

“Looking ahead, what can we expect as the legal dust settles?

“Calls for repeal will continue, but they will fade. The legal imperative to implement the law pushes elected officials beyond repeal. Governors, even those from the 26 states who argued against the law, must make tough policy decisions, getting into the weeds of coverage and setting up insurance exchanges. Some will continue to resist, at least until the November elections. All along the tortuous path, there has been an irony – the states whose citizens will benefit most from the law’s provisions are often those where the elected leaders are most whipped into frenzy over the laws unconstitutionality. How long that frenzy will last is difficult to say – surely it will dissipate, but perhaps not until after Election Day 2012.

“Of course, the most important effect of the Supreme Court decision – punctuating the nearly four-year fight – will be on the people’s health. Now that the political and the constitutional law phases have played out, we have an opportunity to refocus, finally, on health and health care. Perhaps Americans will shift to the underlying story of health care reform that started us down this path in the first place – the people with pre-existing conditions, the young adults without insurance, the small businesses looking for affordable ways into the health insurance market, and the many others for whom a new world of possibilities has just opened. When the dust of this sandstorm has settled, this will be the lasting story of the ACA. But after so many years of political and legal saturation, it may be a while before we can focus again on the people whose lives will be improved.”

Keith Wailoo is author of “The Troubled Dream of Genetic Medicine,” “Dying in the City of the Blues: Sickle Cell Anemia,” the “Politics of Race and Health; How Cancer Crossed the Color Line,” and other studies on the history and politics of health care in America. He is co-editor of “Three Shots at Prevention: The HPV Vaccine and the Politics of Medicine’s Simple Solutions.” At Princeton, he teaches courses on history and health policy; on race, drugs, and drug policy; and (in the fall 2012 with Princeton University President Shirley M. Tilghman) Modern Genetics and Public Policy.

Uwe Reinhardt, James Madison Professor of Political Economy and professor of economics and public affairs, who is recognized as one of nation’s leading authorities on health care economics:

“It may seem that the Supreme Court’s decision to uphold the Affordable Care Act of 2010 hinged on semantics: whether the letter sequence ‘p e n a l t y’ is in the nature of punishment for a misdemeanor or a tax. In fact, from an actuarial perspective, one might construe the penalty as a crude approximation to the actuarial average cost uninsured, individuals as a group might visit on hospitals in the form of unpaid bills. Therefore the revenue from penalties should be paid hospitals through disproportionate share moneys.

“In fact, however, the Supreme Court decision is the outcome of just one more skirmish in a decade’s long fight over the question: to what extent must healthier and more fortunate Americans be their poorer and sicker brothers’ and sisters’ keepers in health care?

“The supporters of the ACA deserve a moment of joy over the Courts decision, but for them it is just a short ‘R and R,’ as soldiers call it. The next big battle will be fought in the upcoming presidential and congressional elections. It will be fierce and tenacious, supported by huge sums of money on both sides.

“Should Governor Romney win the White House and bring with that victory a Republican Congress, attempts will be made to repeal the entire Act, although that probably would not survive a filibuster by Democrats. But portions of the bill – especially the subsidies and Medicaid expansion – might be gutted through a budget reconciliation vote.

“In the end, though, the bluster that ‘I (or we) will repeal the entire ACA’ always evokes in me the image of a dog chasing a car. What will the dog do when the car stops?

“In this case, what alternatives to coping with the large number of uninsured and poor Americans who cannot pay out of pocket for health care do the opponents of the ACA have in mind?

“An answer to that question will be even more interesting that the Supreme Courts historic decision.

“So, stay tuned.”

Janet Currie, professor of economics and public policy; director, Center for Health and Wellbeing (CHW). The Center runs a program in U.S. Health Policy:

“This historic ruling removes the uncertainty about the constitutionality of the Affordable Care Act. The next test will come in November. In the meantime states have much to do setting up health care exchanges and preparing to expand their Medicaid programs. The ruling did allow states to opt out of the Medicaid expansion, but to do so would leave billions of federal dollars ‘on the table’ and would leave poor adults few options for health insurance coverage. There is likely to be great pressure on states to implement the Medicaid expansion from their own hospitals and medical providers.

“All we have learned from previous expansions of public health insurance programs to the previously uninsured suggest that it will make people happier and healthier — the recent expansion of Oregon’s Medicaid program also reduced the probability that people faced medical debt. But higher numbers of people with health insurance coverage generally means more medical spending rather than less.

‘Bending the cost curve’ is the next policy frontier, and this requires understanding the drivers of medical spending and variations in medical spending that are unrelated to health outcomes.”

Adel Mahmoud, Senior Policy Analyst Lecturer with the rank of Professor, Woodrow Wilson School and Molecular Biology

“The Supreme Court decision may open the way for the United States to join the rest of the world in offering ALL of its citizens a system that guarantees some form of healthcare coverage. I hope it adds strength to the Administration and those who care to focus on what matters for the future of the country without the diversionary tactics of politics as usual. The road ahead is still treacherous and needs thoughtful involvement of a lot of those planning or implementing one of the most complicated healthcare systems in the world. It is one step forward!”

Heather Howard, lecturer in public affairs at the Woodrow Wilson School and director of the State Health Reform Assistance Network*

“Today the Supreme Court affirmed the constitutionality of the Affordable Care Act, which would extend health insurance coverage to 32 million Americans. In a divided opinion, a majority of the court found that the individual mandate would be unconstitutional under the Commerce Clause, but surprisingly Chief Justice Roberts joined the liberal members to uphold it under Congress’ taxing authority. The court also affirmed the constitutionality of the Medicaid expansion, but in an interesting wrinkle held that Congress cannot withhold a state’s entire Medicaid funding if the state refuses to adopt the ACA expansion.

“The focus will now turn to state implementation, as states build health insurance exchanges, institute new insurance reforms to strengthen private insurance markets and ensure the availability of affordable insurance products, and prepare for the Medicaid expansion. Some states may still wait until after the election to start moving, while others are likely to build on planning work to date, jumpstarting their implementation work in an effort to meet the aggressive timelines in the ACA. While states appear now to have flexibility to reject the Medicaid expansion, there will be tremendous pressure from consumers, hospitals and other providers to take advantage of full federal funding in the initial years and to avoid gaps in coverage for lower-income Americans.”

*The State Health Reform Assistance Network is focused on setting up insurance exchanges, instituting insurance market reforms, expanding Medicaid to newly eligible populations, and streamlining eligibility and enrollment systems. Funded by The Robert Wood Johnson Foundation, it is providing states with essential resources to implement key health insurance coverage provisions of the Affordable Care Act.

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Juvenile Justice Moving into the Twenty First Century

This week, the Supreme Court decided to effectively bar mandatory life terms for juveniles. (The New York Times) The ruling marks a significant point in a long period of transition for juvenile justice policy.

Beginning in the 1980s through the early 1990s, youth crime rates rose in the United States. Some politicians felt that the juvenile system was ineffective and that there was no evidence of rehabilitation in youth offenders. They saw the system as something that worked for the crimes of a milder time, but that with the violent crimes being committed by current youth, they needed more punitive policies. “As the juvenile crime rates – particularly homicide – rose, politicians across the country rushed to enact tough policies through several legislative strategies.” More than 250,000 young offenders were transferred each year into the adult system–getting adult time for adult crime. (Adolescent Development and the Regulation of Youth Crime- Future of Children-“Juvenile Justice”)

Discussions around the juvenile justice system, particularly the trying of children as adults and mandatory life sentences continued, with people from both sides of the issue passionate in their stance. Gradually, policies began to change. “In 2005, in Roper v. Simmons, the court eliminated the juvenile death penalty. In 2010, in Graham v. Florida, the court ruled that sentencing juvenile offenders to life without the possibility of parole was also unconstitutional, but only for crimes that did not involve killings.” And this week the Supreme Court ruled that laws requiring adolescents convicted of homicide to receive a life sentence are unconstitutional.

“Mandatory life without parole for a juvenile precludes consideration of his chronological age and its hallmark features–among them, immaturity, impetuosity, and failure to appreciate risks and consequences,” stated Justice Kagan. “It prevents taking into account the family and home environment that surrounds him–and from which he cannot usually extricate himself–no matter how brutal or dysfunctional” (The New York Times)

In their chapter, “Adolescent Development and the Regulation of Youth Crime,” Elizabeth Scott and Laurence Steinberg state that “Research in developmental psychology supports the view that several characteristics of adolescence distinguish young offenders from adults in ways that mitigate culpability. These adolescent traits include deficiencies in decision-making ability, greater vulnerability to external coercion, and the relatively unformed nature of adolescent character.”

Laurence Steinberg, professor of psychology at Temple University and issue editor of the Future of Children’s Juvenile Justice volume states in the New York Times, “About 10 percent of young violent criminals become adult offenders. But no one knows which ones. We tracked about 1,300 young convicted felons, the majority of them violent, over seven years. We interviewed each kid for hours so we knew more about them than any court will ever hope to know, and we saw them every six months. We were unable to predict which ones would be in the 10 percent.”

As the Future of Children’s policy brief on juvenile justice notes, “Both widely accepted legal principles and research on adolescent immaturity argue that juveniles are less responsible for their criminal behavior than adults and should therefore receive less severe punishment. Research shows that harsh punishment in adult facilities increases the probability of future violent crimes and that most youngsters who commit criminal offenses will abandon illegal behavior as they enter adulthood.”

“Monday’s ruling,” Steinberg said, “along with the earlier ones on juveniles, is clearly a win from the point of view of developmental science.”

“Lawmakers may be ready to approach juvenile justice policy more thoughtfully today than they have in a generation. If so, a large body of recent research that was not available twenty years ago offers insights about adolescence and about young offenders. Using this scientific knowledge to shape the direction of juvenile justice policy will promote both social welfare and fairness.” (Adolescent Development and the Regulation of Youth Crime- Future of Children-“Juvenile Justice”)

For more, go to: www.futureofchildren.org.

Anne-Marie Slaughter on Work and Family Balance

Anne-Marie Slaughter, Bert G. Kerstetter ’66 University Professor of Politics and International Affairs at Princeton and former dean of Princeton’s Woodrow Wilson School of Public and International Affairs, writes about the challenges of work and family balance in a recent piece in the The Atlantic, Why Women Still Can’t Have it All.

The article presents several observations, which echo the Future of Children’s Work and Family issue findings:

–The rising shares of women in the workforce and of families headed by single parents have made work-family issues especially prominent and challenging, as more employees face care responsibilities at home and fewer have a stay-at-home spouse to manage them.

–For high-income families, often the problem is too many hours of work; for low-income families, the problem is often too few hours of work, too little control over those hours, and insufficient income. Families in the middle not only face insecurity about their jobs and financial situation, but also have limited resources to meet their families’ needs. Their incomes are too low to purchase high quality care for their dependents, but too high to qualify for help from public programs.

–Workplace flexibility is a promising approach to easing work-family conflict. For employees, it is linked with job engagement, satisfaction, retention, and better health; for employers, with higher productivity.

–School-aged children require care and supervision before and after school and during school vacations. Schools, out-of-care providers, and employers can ease work-family conflicts by taking account of changes in working families. In today’s economic climate, workplace flexibility options may have the most potential for meeting families’ diverse scheduling needs.

As Slaughter urges, “ultimately, it is society that must change, coming to value choices to put family ahead of work just as much as those to put work ahead of family. If we really valued those choices, we would value the people who make them; if we valued the people who make them, we would do everything possible to hire and retain them; if we did everything possible to allow them to combine work and family equally over time, then the choices would get a lot easier.”

For more on work and family, go to the Future of Children’s issue on Work and Family.

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Speaking with Children about Obesity

The childhood obesity crisis has been in the news for many months now. We know that obese children face certain difficulties with health in adulthood. Heart disease, high blood pressure, hardening of the arteries, type 2 diabetes, metabolic syndrome, high cholesterol, asthma, sleep disorders, liver disease, orthopedic complications, and mental health problems are just some of the health complications of carrying excess weight. (Future of Children, Childhood Obesity).

Despite all the public attention and concern, policymakers are uncertain how best to combat childhood obesity. Researchers have identified many possible causes of the obesity epidemic, but the research base on how to prevent obesity is still limited, making it difficult to decide how best to proceed. With state and federal budgets already strained, it is important to develop programs and policies that are effective and can be implemented at reasonable cost. Parents play an important role in these efforts.

In a recent article “Talking to your Kids About Weight Loss,” Chris Iliades, writes that “in a country where 17 percent of all children are obese and another 17 percent are overweight, childhood obesity should be a topic of conversation for families. But according to a recent study published in the journal Pediatrics, how we talk about childhood obesity could be just as important as whether we’re talking about it. According to the study, 36 percent of parents would react to words like “fat” and “obesity” by putting their child on a strict diet and another 35 percent would go off in search of a different doctor — and neither of these reactions are best for a child’s health..”

As the authors of the Future of Children’s Childhood Obesity chapter, “The Role of Parents in Preventing Childhood Obesity,” caution, “even though childhood obesity experts discourage dieting, parents who feel the need to control a child’s weight commonly encourage dieting. Studies on dieting behaviors consistently report that their parents’ inducement to diet is the most significant factor in causing children to begin dieting. Their parents’ direct verbal encouragement is more influential than the parents’ own dieting behaviors. Many adolescents whose parents urged them to diet report engaging in unhealthful dieting behaviors. Focusing on dieting for weight control may overemphasize the thinness ideal and over time may even lead to an increased risk for obesity. It is important for parents of overweight children to learn about the dangers of dieting and to talk with their child’s doctor or health care provider about ways to promote healthful habits.” (to view the source for this quote, please see page1 75 of this article.)

The authors conclude that “parents play a critical role at home in preventing childhood obesity, with their role changing at different stages of their child’s development. By better understanding their own role in influencing their child’s dietary practices…parents can learn how to create a healthful nutrition environment in their home, provide opportunities for physical activity, discourage sedentary behaviors such as TV viewing, and serve as role models themselves.”

To read more about parents’ role in preventing childhood obesity, please visit the Future of Children website and the journal on Childhood Obesity

Why are Mental Health Disorders in Children Increasing?

In a recent New Jersey Star Ledger article, guest columnist and Future of Children author Neal Halfon writes about the shift in disabilities from physical disorders to mental health disorders.

“The latest issue of Princeton/Brookings, Future of Children adds to the growing number of studies documenting that childhood disability rates are not only unexplainably increasing, but also that the way disabilities manifest is significantly changing,” Halfon writes. “Where the poster child of disability in the 1960’s was on crutches, the new face is a child with autism, attention deficit hyperactivity disorder, or other problems affecting the brain.”

“Growing rates and shifting patterns of childhood disability challenge notions that U.S. children are generally healthy and suggest substantial changes in the risks children encounter. While disabilities are more common in children from lower-income households, a lack of family resources, education, or other forms of social deprivation don’t explain all of what’s going on. Some risk-hunting epidemiologists are considering whether any of the thousands of new chemicals in our environment are to blame,” Halfon continues, “while others are examining the role that toxic stresses may play in jolting developing nervous systems onto an aberrant path.” A recent Future of Children blog post further explores this topic, pulling research from the Children with Disabilities article on the prevention of disability in children.

The Future of Children’s Children with Disabilities volume explores various possible reasons for the shift in disabilities from physical to mental health disorders while emphasizing that regardless of the cause of the disability, “large numbers of children must live with a diagnosed disability, (and) these children merit attention.”

This is particularly true for children with mental health disorders. Both the Delaney and Smith and Stabile and Allin articles in the Children with Disabilities volume highlight the significant lifetime costs of mental health disorders for children. In fact, mental health disorders in childhood generally have larger impacts than childhood physical health problems in terms of adult health, years of schooling, participation in the labor force, marital status, and family income. Identifying the best ways to support these children is clearly important.

To read more about the ways to support children with disabilities’ education and health, go to the Future of Children’s Children with Disabilities volume. You may also be interested in reading about our recent practitioners’ conference, “Working with Children with Disabilities: Tools for Parents and Schools.

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Prevention of Disability in Children: The Role of the Environment

Over the past fifty years, the number of reported childhood disabilities has steadily increased and the nature and consequences of disability have changed drastically. Prior to 1960, the poster child for childhood disabilities would have been a child with polio, wearing leg braces and using crutches for support. Today’s poster child could be a child with autism. Where the pre-60s child wore his disability for the world to see, in many cases today’s child experiences his disability internally. Over the past several decades, predominant childhood disabilities have shifted away from physical disorders toward mental health disorders. (Future of Children: Childhood Disabilities)

Much public attention and many resources are focused on medical research to identify risk factors and mitigate symptoms of disability for individual children. However, Stephen Rauch and Bruce Lanphear, in their chapter “Prevention of Disability in Children: Elevating the Role of the Environment,” argue for a broader focus on environmental influences that put entire populations at risk. “Identifying and eliminating or controlling environmental risk factors that incrementally increase the prevalence of disability is the key to preventing many disorders,” they write.

When seeking to prevent disability, there are three levels that need to be considered. Primary prevention seeks to keep disabilities from developing. Secondary prevention utilizes methods of screening and early detection to identify problems before they can do “too much damage.” Tertiary prevention focuses on restoring health and function to people who have already developed a disability. Tertiary and secondary prevention are the primary efforts of the clinical community. But in order to reduce the prevalence of disability in the population, primary prevention is essential.

The causes of many disabilities in childhood are complex and result from the interplay of environmental risk factors and genetic susceptibility. Purely genetic and purely environmental disabilities exist, but they are rare. Children are particularly vulnerable to environmental stressors; they pass through several delicate developmental stages and, pound for pound, they eat and breathe more environmental contaminants than adults. An exposure that is harmless in adults can have a dramatic effect when it occurs during fetal development or early childhood.

One example of an environmental risk for disabilities in children is lead in house paint. Lower IQ and ADHD in children have both been linked back to lead as has criminal behavior in adulthood. A cost-benefit analysis of requiring lead based paint to be removed concludes that every $1 spent to reduce lead hazards in housing would produce between seventeen and two hundred twenty one dollars in benefits by reducing screening and treatment for lead toxicity, ADHD treatment, and special education.

(Rauch and Lanphear Future of Children: Childhood Disabilities)

In a long awaited move, the CDC recently cut the threshold for lead poisoning. This new lower threshold “means public health agencies have a bigger job to screen children for lead and to prevent exposure in the first place,” said Lanphear in an interview with John Ryan of Seattle station KUOW “The new standard from the Centers for Disease Control and Prevention nearly doubles the number of children considered to have lead poisoning. Now, one out of 40 American kids has what’s deemed a dangerous level of lead in their blood, reported Northwest public radio.” (http://www.nwpr.org/post/cdc-cuts-lead-poisoning-threshold)

This change in lead level standards is just one example of how our regulations and knowledge about environmental risk factors changes over time. In the face of such changes, it makes sense to consider a preventive approach that shifts the entire population’s health curve in a positive direction. As Issue Editors Janet Currie and Robert Kahn summarize in the introduction to Children with Disabilities, “the heart of [Rauch/Lanphear’s] argument is that societal choices can shift the curve of child health outcomes to increase the probability that some children will be moved from a nondisabled to a disabled state. Exposure to chemicals in the environment, for example, may decrease the attentiveness of all children, but in a subset of more vulnerable children, the exposure may lead to symptoms and impairment that warrant an ADHD diagnosis. The implication is that society should pay attention to shifting the entire distribution of health outcomes in a positive direction and that doing so will reduce the toll of childhood disability. Such a public health focus on prevention is a useful comple­ment to the usual medical focus on improving technology or the quality of medical care for children who already have disabilities.”

For more information, read our Children with Disabilities volume: www.futureofchildren.org.

The Hidden Costs of the Prison Boom for the Mental Health of Women

By Christopher Wildeman, Assistant Professor of Sociology at Yale University

This blog originally appeared on May 16, 2012 in Social Science Space. Chris received his Ph.D. in Sociology and Demography from Princeton University in 2008.

The consequences of the prison boom for poor, minority men are almost undeniable. According to recent estimates, about 25 percent of African-American men experience imprisonment by their mid-30s, with rates increasing to 60 percent to 70 percent for African-American men who did not complete high school. Lifetime risks for white men who dropped out of high school are also high–about 15 percent of them are imprisoned at some point–but not even in the same ballpark as the risks for comparable African-American men.

Much research on the costs of the prison boom focuses solely on men. In one regard, this makes good sense. These men are, after all, the ones who will be held in a local jail or a state or federal prison. Likewise, they are the ones whose labor market prospects will suffer, whose romantic relationships might fail, and whose children will inquire about them. Yet in another sense, focusing only on these men misses much of the picture, as their incarceration may also influence the well-being of the women attached to them, including their mental health. The financial well-being of their romantic partners and children suffers as well. Similarly, if men’s romantic relationships suffer or end altogether, then these women also experience the pain of breaking up or the struggle to keep their faltering relationships going. And if the time apart from children is difficult for men, imagine how difficult it is for their children–especially since many of these men might have been inconsistently involved in their children’s lives even before going away. All of these effects may add up to a partner’s incarceration having serious consequences for women’s mental health, as finances and family life strongly affect women’s well-being.

In a recent article (Christopher Wildeman, Jason Schnittker, and Kristin Turney. 2012. “Despair by Association? The Mental Health of Mothers with Children by Recently Incarcerated Fathers.” American Sociological Review 77:216-243), we considered how the incarceration of a father affects mother’s mental health utilizing data from the Fragile Families and Child Wellbeing Study–a data set that captures the experiences of about 5,000 fathers and mothers, living in American cities, who have children together.

The results were sobering. For these women, the incarceration of their children’s fathers made a bad situation worse. Already at elevated risk of poor mental health for many of the same reasons that the fathers of their children were at risk of incarceration, their mental health took an additional hit as a result of the fathers’ recent incarceration. And this hit was heavy. For the women in our study, having the father of her child incarcerated increased her risk of experiencing major depression by about 25 percent, an especially substantial increase considering how elevated these women’s risk of being depressed would have been even if the fathers of their children had not experienced incarceration. Effects on life dissatisfaction were comparable, suggesting that incarceration increases these women’s risks not just of experiencing a severe mental health condition such as major depression, but also of feeling less good about their lives even if they were not actually depressed.

So what explains this effect? According to our analysis, the very same forces that have received so much attention from those interested in the consequences of incarceration for men explained much of these damaging effects on women’s mental health. The incarceration of a father leads to greater financial instability among mothers, deterioration of their already-vulnerable romantic relationships, and increases in parenting difficulties. These effects, in turn, are associated with mental health. Interestingly, we find that changes in family life–the quality and structure of romantic relationships and the circumstances surrounding parenting their child–rather than the well-documented economic effects of incarceration explain much of this association, suggesting the loss of a father and partner hurts these women’s mental health more than the loss of a paycheck.

As we consider the various costs and benefits of incarceration, our calculator shouldn’t get turned off after we consider its crime-fighting benefits, budgetary costs, and implications for the lives of marginalized young men. Indeed, our results suggest that a potentially even greater cost of incarceration may be how it damages the women and children left in its wake. These hidden costs of the prison boom should be considered, as the mental health of the women and children who face such substantial obstacles already is important for our national wellbeing.

Dr. Christopher Wildeman

Dr. Jason Schnittker

Dr. Kristin Turney

For more research focused on fragile families, see the Future of Children’s Fragile Families volume.

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The Transition to Adulthood for Children with Disabilities

Prior Future of Children research underlines the challenges faced by youth approaching adulthood, particularly among those from disadvantaged backgrounds with no postsecondary education on the horizon. Even thornier is the pathway to adulthood for youth from more vulnerable populations such as those challenged with a chronic illness, mental health issues, or physical disabilities. A recent study highlighted by CBS News indicates that one in three young adults with autism has completed no college or technical schooling and has no paid work experience seven years after graduating high school. This is urgent news considering that roughly half a million autistic children will be reaching adulthood in the next ten years.

Recognizing the importance of education for children with disabilities before and throughout the transition to adulthood, the United States has made many advances in special education over the past few decades. The special education system gives children with disabilities greater access to public education and provides an infrastructure for their schooling. Moreover, some services even extend through early adulthood, which is more than can be said for other vulnerable populations. The federal Individuals with Disabilities Education Act (IDEA) requires that secondary schools develop individualized transition plans including long-term education goals, vocational training, and general life skills.

Despite these advancements in special education, Laudan Aron and Pamela Loprest indicate in their chapter Disability and the Education System, that many problems remain, including the over- and under-identification of some subgroups of students, delays in providing service to students, as well as bureaucratic and financial barriers that often complicate effective service provision. In addition, some needed services may not be available when children have reached adulthood. A recent article in US News and World Report indicates that families of children with autism often describe leaving high school as “falling off a cliff” because of the lack of services for adults on the autism spectrum.

Providing these children with needed support before and after the transition to adulthood has substantial immediate and long-term economic costs and benefits. A recent article in CNN Health reports that out-of-pocket medical expenses are growing fastest among Americans 18 years old and younger. The Future of Children volume, Children with Disabilities indicates that these expenses are higher among families caring for a child with a special health care need. In their chapter, The Economic Costs of Childhood Disability, Mark Stabile and Sara Allin suggest that due to these high costs to children and families, the benefits of effective interventions to prevent and reduce childhood disability might well outweigh the societal costs of such programs.

On May 23, 2012, the Anderson Center for Autism hosted an event for more than 350 practitioners and parents, which featured research from the Future of Children’s Children with Disabilities volume, and discussed effective early interventions for children with disabilities. For more discussion on evidence-based policies and intervention programs for special needs children and those making the transition to adulthood, see the Future of Children volumes Children with Disabilities and Transition to Adulthood. Add your voice by commenting on the Future of Children blog.

Minority Birth Rate Surpasses Whites in US

New 2011 census estimates show that for the first time, racial and ethnic minorities make up more than half of the children born in the U.S. For these newborns of America’s first “majority minority” generation, and for all Americans under 50, Hispanics are the second-largest population group after whites of European descent (Wall Street Journal).

These findings come amidst data from the Pew Hispanic Center, which show that net immigration from Mexico has stopped, or possibly reversed. “The current congressional and Supreme Court interest in reducing immigration – and the concerns especially about low-skilled and undocumented Hispanic immigration – represents issues that could well be behind us,” notes William H. Frey, a demographer at the Brookings Institution who analyzed the census data, in the Huffington Post.

In fact, census data reveal that immigration is not the main driving force behind America’s growing diversity. Data for 2010 show Hispanic women give birth to 2.4 babies on average compared to 1.8 babies for non-Hispanic whites, and minority women are younger on average, so more of them are of childbearing age (Wall Street Journal). In addition, as Princeton professor and director of the Mexican Migration Project Doug Massey notes in Reuters, “net zero migration doesn’t just mean undocumented migrants are staying in Mexico; it also means those already here aren’t going home…” The census has forecast that non-Hispanic whites will be outnumbered in the United States by 2042.

This demographic shift has implications for United States’ policy, particularly in the area of education.

A substantial percentage of minority children, especially those with Latin American origins, are falling behind in school. Evidence from the Future of Children’s volume on Immigrant Children shows that three policy reforms – increased attendance in quality preschool, improved instruction in English, and increased attendance in postsecondary education – would lift their wellbeing as adults and increase their economic and social contributions in American society.

“Today’s minority youth are coming of age in an aging society… which will depend increasingly on the productivity of younger workers,” write Immigrant Children issue editors Marta Tienda of Princeton and Ron Haskins of Brookings. “At a critical juncture in its history, the United States has an opportunity to invest in [minority] youth and enable them to contribute to national prosperity.”

For more information on the country’s changing demographics, immigrant children, and education reform, see the Future of Children volumes on Fragile Families, Immigrant Children, Transition to Adulthood, and America’s High Schools.

How Do We Define and Measure Disabilities in Children?

On Tuesday, May 8th 2012, the Brookings Institution hosted an event featuring the Future of Children’s most recent volume, Children with Disabilities and its corresponding policy brief, “The SSI Program for Children: Time for Change?

Issue Editor Janet Currie, the Henry Putnam Professor of Economics and Public Affairs and director of the Center for Health and Wellbeing at Princeton University, highlighted the major themes from the volume including the documented increase in disabilities; the recent shift in disabilities from physical to mental health disorders; the significant costs associated with disabilities for individuals and families; the fragmentation of services; and the possibilities for improving the wellbeing of children with disabilities with the medical home model, new technologies, and prevention efforts.

Researchers’ efforts to track trends in disability and understand the causes and implications of the recent increase in diagnoses have been seriously complicated by changes over time in how disability is defined, which criteria should be used for screening, which services should be made available, and to what extent particular conditions are actually considered disabling.

These fundamental challenges of definition and measurement over time became more important as the discussion continued to the Supplemental Security Income (SSI) cash assistance program for children with disabilities. Ron Haskins, Co-Director of the Center on Children and Families at the Brookings Institution, asked a panel including keynote speaker Kenneth Apfel of the University of Maryland and former commissioner of the Social Security Administration, who presented on the history of the program, if it was time to change SSI.

The panel, which also included Marty Ford, Chief Public Policy Officer for the Arc of the United States, Matt Weidinger, Majority Staff Director of the Committee on Ways and Means, U.S. House of Representatives, Jonathan Stein, General Counsel at Community Legal Services of Philadelphia, and Michael Wiseman of the Office of Retirement and Disability Policy, emphasized the need to create a new vision for SSI. They contend that SSI should maintain the income stability it provides for severely disabled children (and there was debate as to how this should be done). It should also look more carefully at reviewing SSI recipients over time to better understand their differing disability levels, and to support them, particularly as they transition to adulthood.

Eventually, the conversation turned to the inevitable: budget constraints. As Ron Haskins and Matt Weidinger noted, Congress is going to cut funding, possibly looking even to means-tested programs such as SSI.

Given that, what is realistic? “And, what are the outcomes that show that SSI is working?” Weidinger asked.

Janet Currie’s response brought the conversation back to one of the volume’s key findings: without a consistent definition of disability and data that tracks children over time, it is difficult to discuss research-based outcomes of SSI. This is not because the program does not work, but because the data simply does not exist. But the credibility of the program should not be discounted simply because of a lack of evidence.

In the meantime, as the volume notes, “researchers must pay attention to how disability is defined and develop workable definitions that can be implemented in national surveys and maintained over time. Only in this way can they learn whether the increasing numbers of children with disabilities represent an exploding epidemic or an emerging, more nuanced understanding of what it means to be disabled… policy makers should be mindful that whether or not the number of special needs children is growing, large numbers of children must live with a diagnosed disability and these children merit attention.”

To listen to the panel’s recommendations for improving the SSI program, click here.

To read the Children with Disabilities volume, click here.